Are You or Your Child Living with SCN8A Developmental and Epileptic Encephalopathy Syndrome (SCN8A-DEE)?

Right now, research is underway on an investigational medication for SCN8A-DEE, and you or your child may be able to take part. See if you or your child may qualify for the Kayak Study.

See who may qualify

We are currently enrolling young people with SCN8A-DEE. If you or your child is interested in taking part in this study, please continue below and complete the questionnaire to determine eligibility. Involvement in this research may contribute to a larger effort working to find alternative treatments that may provide greater seizure freedom for SCN8A-DEE or other forms of epilepsy.

Learn more about the Kayak Study.

See If You or Your Child May Qualify

Step 1 of 3

By answering the following questions, you agree to have your information retained for the duration of the study, and you will be contacted by phone or email (as provided) only regarding your interest in study participation. If you are completing the prescreener on behalf of your child, please answer questions using their information.

e.g., 12345

This website uses Secure Socket Layer technology and encryption methods to protect personal health information. If you’d like to know more about our privacy policy, click here.

Step 2 of 3

This website uses Secure Socket Layer technology and encryption methods to protect personal health information. If you’d like to know more about our privacy policy, click here.